Primary and auto-immune diseases are a great and ongoing epidemic in our Western societies. We often don’t see these illnesses because the symptoms aren’t always obvious and those affected have learned extraordinary ways to cope and keep going.
It is also true that the hidden drivers behind immune disease suffering are adverse child experiences (ACEs) and trauma. These are some of the “upstream” causes that are the active ingredients for medical, emotional and behavioral disorder. We need to create societies in which these sufferers receive understanding and compassion. We must also acknowledge that there are upstream factors that impact our broader illnesses (heart and pulmonary disease, diabetes, cancers) and our behavioral disorders (addictions, crime, eating disorders). Unaddressed stress creates multiple vulnerabilities.
Recently, if received this communication in an email. It struck a chord.
From a sufferer…
Quick lesson about primary- and auto-immune diseases. It takes an average of three years and five doctors for a person to get a proper diagnosis of an autoimmune disease. It is a disease where instead of your white blood cells protecting your body from invaders, they turn around and attack your cells, tissues and organs. Chronic fatigue is another symptom. It is not a cold or the flu, you will never get better, and even a nap will not help. Just eating a salad and hitting the gym won’t slim your face or get the pounds off. Sleeping 10 hours doesn’t leave you well rested, ever. The last minute changes in plans because that “just got ran over” feeling never makes appointments, it just walks in whenever you aren’t ready. Painful joints, muscles and bones, dry skin, breaking hair, hair loss, mood swings, and depression are just the tip of the iceberg. You are also prone to having multiple autoimmune diseases, they typically come in pairs of two. You easily catch viral and bacterial infections. You have days where no matter how hard you try, you just can’t smile for anyone.
I urge you to think twice before passing judgment and thinking our nation is overreacting to the extra measures being taken to curb the spread of this virus. YOU might be able to recover from it no problem however, carry it to someone with an autoimmune disease and that individual won’t be as lucky.
I am watching the ones who will take the time to read this entire post and react. Please, in honor of someone who is fighting Graves Disease, Rheumatoid Arthritis, POTS, MCAD, Sjogren’s, Scleroderma, Hashimoto Disease, Ankylosing Spondylitis, Fibromyalgia, Lupus, Sarcoidosis, Hepatitis, Raynauld’s Syndrome, Diabetes, Mold Illness, Celiac, CROHN’S, Ulcerative Colitis, Pemphigus, SPS, MS, PBC, CRPS, Antiphospolipid syndrome, Psoriatic Arthritis, CIDP, MMN, PANS/PANDAS, And GPA.